Parents caring for the parent support thread (Part 2)

A bff is one of several siblings, and they have been trading off taking their mom in for several months at a time for two years now. It’s worked pretty well for them. My bff feels like they missed the window to get her in an independent living situation and wishes they had moved her much earlier.

Bff has been handling her mom’s finances for years, even before they started that round-robin moving situation. My sister and I took over our mom’s financial stuff years ago. Is your mom amenable to having help? My mom initially was a bit resistant as she was really proud of handling the bills for her whole marriage. Want to know what she paid for gas in March 1978? She could tell you. But the whole transition to paperless caused some issues as she doesn’t own a computer or have an email. Once I realized that she hadn’t paid her AT&T bill for three months, she saw the wisdom of accepting help. Are you on her accounts? If she won’t accept help, can you backstop her, checking things online?

3 Likes

I had a friend who cycled the mom through six sibs. It seemed to work well when health was good. (Later the mom just stayed with her.) Her advise was to have a medical binder that travelled too… avoid new docs/ER redoing same tests.

5 Likes

I have kept a ‘medical time line’ on myself since I was diagnosed with aggressive stage III cancer in 2009 - a line for each date of test, procedure, visit - and separate folders with notes from various visits, copies of tests, etc. I began a ‘medical time line’ on my husband since Jan 2022 (when he started needing specialists, cardiac and other). DH’s is up to page 4. Mine is on page 10 and I see another specialist at the end of the month. DH has a carrying bag with his documents, and I have my own. Each keep a sheet with all vaccinations.

I highlight special things on the medical time line which makes it helpful to find information.

SIL/BIL have a lot of health issues, and pretty much have their providers in one tight area and one hospital. I provided SIL some advice on which walk in clinic BIL needed to go to (she said her medical group has a walk in clinic, and there is an orthopedic clinic) - BIL had fallen backward with injury area across his upper shoulders with pain lifting his arms the next day. I told her go to the orthopedic clinic, and that was the right call. They did X-rays and later he had MRI and CT scan - the PA showed the MD what results they had, and he sent BIL/SIL to ER for hospital admit and additional testing. BIL needed to be on steroids to reduce the swelling, and it was causing his cervical spine bones to press against his spinal column. Since the swelling went down to where he had arm movements w/o pain, he is going to be re-evaluated in 3 weeks. Concern was that he needed cervical spinal surgery (going through the front), and he may still need it. We shall see. But BIL is morbidly obese, and actually had to be in ICU for the hourly glucose checks and IV insulin regulation - steroids can make blood sugar levels ‘crazy’, and indeed he would run 400 level blood sugar. They couldn’t put him on a regular unit because there was no assurance that he would be so closely monitored.

SIL use to be a medical assistant (community college training), and I told her to write herself notes, who were the MDs, what tests were done, etc.

Key was having the Orthopedic MD involved early, at the initial walk in clinic visit. BIL had written admit orders (or called in orders) so he was expedited through ER, then put in a monitoring area before a bed opened up for him in ICU.

Definitely have a ‘handle’ on parent(s) medical providers and their medical issues - if one or both parents decline to where offspring need to step in - it is good to have a lot of medical information. And for going to stay with various offspring.

We are not “on” her accounts. PS has been working hard on consolidating her finances into a manageable grouping. LS has her POA but the bank wants more paperwork on that, so it’s in process. So far companies have been very kind and helpful. She doesn’t have broadband and her computer skills are just basic enough to get her in trouble on the daily.

It’s not so much she won’t accept help as that this is not sustainable for either PS or LS, and we don’t know how to gently explain that only 3 months after Dad died. She reverts to “I just want to die now” and it’s not helpful (but I understand how she gets there). Her husband, brother, cousin, two of her college friends, and BFF all died in the same 4 months of 2023.

The medical binder exists, and I am her HIPAA designated stand in for medical things. Thanks for the reminders that I would want that with her.

My mom did the she wanted to die now routine for a while. Told all of my daughter’s boyfriends that she has lived too long. It was fun, not.

Once we were able to get her to move to independent living, I took over her finances and my sibling is the medical POA, she stopped saying it.

I think it was the stress of keeping up the maintenance of the house, being in charge of finances and the fear of the unknown. Once we made things less stressful, mom was much happier. That and Prozac :wink:

Mom is doing her own bills again. I’m happy to step in and I do occasionally. But we’ve got the bills down to a bare minimum. The only thing she needs to remember to pay is the monthly Discover bill. She could put that on auto payments but wants more autonomy over that bill.

3 Likes

There is some merit to moving her now, in advance of a crisis. That would give her time to adjust, make friends, and get established in a community before any needs get greater.

The most common thing we heard in moving my parents to a continuing care place was people wish they’d moved sooner, so they could enjoy the services and were familiar with the resources before they needed more care.

4 Likes

100% agree with moving sooner rather than later. We waited too long with my mom.

What is the ideal age for a move to a CCRC, I wonder. Now that my mother is gone, I am looking into them for myself. I don’t want my kids to go through what I went through for 8 years of caregiving.

2 Likes

I think the answer is different for everyone but I know a woman who moved into a multilevel care community a few years after husband died, when she was in her late 60s. She had 9 children, all in the area, who thought she was out of her mind but she absolutely loved it.

She said all her old friends were still married and she wanted to meet other singles. She joined a bunch of groups/clubs at the community and went on every single trip she could take (the community organized all kinds of travel). She said it was the best decision she ever made.

I met her when I was still in my 20s and she’s always stuck with me!

5 Likes

Family dynamics, the dad/mom’s personality needs/situation, who has the time and energy and w/o the parental resistance to make the changes needed. How to not ‘enable’ bad decisions. It is a quagmire! And stressful! Hugs to y’all.

My demented mom died at age 77, but was able to die at home - had a short abrupt decline, then short hospitalization, and a few days home with Hospice, died with two siblings at bedside. So closure at that point, 15 years after my dad’s death at age 64 (of cancer).

DH’s mom was finally moved to skilled care/nursing home at age 92, and had a good week, then her medications stopped working for her Hypertensive Heart Disease, and died a very short time later. DH’s dad died in skilled care at age 92, three months before his wife. DH’s mom should have been in skilled care sooner, but had a caretaker than came in often enough at home to keep her at home - although it was not a good situation (and then the caretaker had a stroke, hospitalization, then suddenly died at home! a few months before DH’s dad died.) DH essentially became his mother’s 24/7 caretaker while all the family visited her before she went into skilled care (he retired a month before his dad died; DH would drive home from her house - with 800 mile drive, when his mother went to the hospital for UTI, then went back up for more 24/7 duty). We had a joint service for his parents in June of that year (when Covid restrictions let up) which was good closure.

Siblings/other relatives - it can be where there is agreement but the elderly parent(s) have a difficult time with transitions. What one is safely able to do, and many do have difficulty when there is the roll reversal with adult child needing to take more responsibility for their parent. Lots of emotions going on.

One thing I remember from a friend’s experience with her mom … even if they aren’t sure they are ready (or you are ready), getting in when you are relatively healthy and have your faculties about you allows staff to see a good baseline and note changes as opposed to entering in crisis. I thought that was a compelling argument for not waiting too long.

7 Likes

It isn’t the AGE it is the miles that matter. I wished I’d moved my mom a year before we did. She was just missing some bills, a few mishaps, etc. we had to trick her into moving to “independent living” side and paid a staff person to go check her meds daily. She was much happier there although she always thought she would be going home soon… she had lost the sense of time though so us saying maybe soon was a long time. When she fell, there was someone there to find and care for her and she moved to the assisted side and eventually to memory care. It all was good for her as she was social and too much alone. No family lived close.

I so agree to get them moved while they are still kicking and have staff know them as a person and not just the husk that was left. Her first care giver staff people came to her funeral while the memory care people didn’t really know her. Maybe they can’t get attached at that point either.

1 Like

It must be hard for memory care staff to meet all residents when they are fading away.

My folks moved to independent living in CCRC after they had already lost quite a bit cognitively so they never made any new friends nor used the transportation services or amenities or classes of the CCRC.

They did dine at the facility, which offers very good food and a decent variety. It was convenient for all of us to visit so we each took turns visiting so they generally had at least 1 visitor or more every day.

When they needed more care, we were able to hire by 15 minute increments or an hour/day, to be sure they woke, dad got his Rx and they showered. As mom needed more help after a hospitalization, she went to skilled nursing and we were all able to visit often.

My aunt moved to a ccrc when she was relatively young and healthy and lived there for decades. She was able to help many fellow residents with taxes, medical bills, driving to errands, etc. She had cared for her own mom for years in her home and didn’t want to burden her loved ones.

She felt she had made the right choice for her.

My neighbors signed up for the ccrc my folks were in and have already deferred going there once as they love our neighborhood and their house. Our neighbors across the street plan to stay in their home until they die.

3 Likes

My opinion…you want to do this while you are young enough to make friends, take advantage of what the community has to offer, etc. You want to be in good enough health that you don’t need to be isolated in any way.

My in-laws moved in their 80’s…and never really established anything in terms of relationships or friendships or activities. FIL died, and now MIL is still there, but really alone. I wish they had made the move ten years sooner…and maybe would have built some relationships.

3 Likes

Random stuff to report in the aftermath of my MIL’s death at the start of Sept:

  • her house is getting sold and closing date is definitely on 11/10. House is in my & DH’s names. Glad to have that mortgage payment off of our backs.
  • DH finally decided that it wasn’t worth the hassle to sell Corningware and Royal Copenhagen plates, so the estate sale company is going to handle all that instead. Thank goodness.
  • probate is going ok so far.
  • it’s a good thing that DH is handling probate instead of his sister because she can’t make a decision on anything to save her life. Even on simple stuff like what do you want for dinner.
  • movers are arriving at my house today w/MIL’s furniture that DH & SIL are keeping.
  • SIL still hasn’t decided or figured out how she wants to get her portion of the furniture shipped/delivered/transported from our house in AZ to her place in southern CA. Meanwhile, it’ll all get to live at my house, which apparently is going to become a free storage unit for her…until DH gets sick of that, which will be at the end of December. In fact, he’s already told her that she has until end of Dec to get her stuff or it becomes ours to do with as we please.

During this whole process, SIL has been clueless and a little demanding and DH & I are tired of it. For example:

4 wk ago, we were all at MIL’s house sorting through more stuff. At the end of the day, we were all headed back to my & DH’s house to spend the night and as we headed out, I noticed that SIL had gone through MIL’s vanity drawers and dumped all of the remaining contents on top of MIL’s bed. Not in an organized way. Tons and tons of costume jewelry and clutter. And random piles of books left on the floor. And more piles of costume jewelry on the floor, too.

so annoying.

On the bed also was this small cardboard tray with some old-looking South Pacific style of treasures. I asked SIL if she wanted that, she said, “No, I’ve taken everything I want.” The following week, I asked her again about the tray of South Pacific stuff (some shell necklaces & bracelets, tropical wood carved forks & spatulas & spoons, and 3 small coconut pouches…1 even contains military insignia of a WW2 Japanese uniform). Since she was so big on confiscating all of MIL’s father’s WW2 merchant marines stuff, his service medals and all that, I wanted to be sure that she didn’t want this stuff, too.

Again, she said no. She asked me about some nesting boxes that apparently belonged to MIL’s father, had I seen them. Nope. I’ve looked all throughout that house and I’ve never seen wooden nesting boxes anywhere at MIL’s house. Looked through every single box, bin, nook, and cranny. Nowhere to be found.

Guess what? SIL’s revisionist history strikes again. She told DH last week that she’d asked about the coconuts and that I’d said I was still looking for them AND that she’d told me that she wanted one.

Nope, she never said that she wanted one. I told her that I was still looking for the nesting boxes, but that I HAD found these 3 coconut pouches.

Now she wants one. “Oh, just one.” Fine. It’s DH’s decision, not mine. But at SIL’s house, none of this stuff is going on display anywhere. It’ll sit in a box or a bin for another 25 years never seeing the light of day.

Right now, the coconut pouches are hanging in our Enchanted Tiki Room themed bathroom and the other WW2 South Pacific stuff is in our Jungle Cruise guest bedroom.

I went ahead and put 1 of the 3 blessed coconuts in 1 of SIL’s bins of stuff.

She even told DH that she’s still deciding if she wants this particular table/desk that MIL had in her entryway. Nope, SIL…statute of limitations has ended now for that. It’s going to be at our house, not yours. You’ve had plenty of time to decide.

This is a woman who doesn’t have any common sense. Sometimes, I wonder how it is that my DH ended up normal yet his sister has her head so far up her rear end that I wonder how she ever sees the light of day. For example:

  • she spent $100k renovating her 1950s-era CA bungalow house 17 yr ago. House inspection said it needed city sewer hook up replaced (was original to house being built). Inspection also found termites. House also had no insulation. She chose to only insulate half of the house, not to address the termites, and not to fix the sewer connection. Now the termites are worse and they can no longer use their garbage disposal because when they do, the garbage disposal stuff ends up in their washing machine.
  • half the house still has non-grounded electrical wiring. She chose not to do anything about that 17 yr ago. Last year, she & my idiot BIL had a beer fridge parked outside on side of the house, plugged into a non-grounded outlet outside. They stupidly did not put the fridge in a spot where it’s covered by an awning. It rained one day. Rain got on the electrical outlet and sparked a fire. Caused some smoke damage in their roof. Entirely because of homeowner negligence. SIL & BIL are refusing to do anything to make repairs.
  • a few months ago, this small-ish window in their laundry room (faces the street) broke. Sort of window where the movable part is on the bottom half. Well, the movable part was up and all of a sudden, slammed down and window shattered. They both refuse to replace or even fix it. won’t even put up plywood to cover the opening. So it’s entirely open to the elements. “Oh, but it’s ok because there’s miniblinds there, so you can’t really tell.” :roll_eyes:
  • instead of fixing any of the above, SIL is taking $8k of her inheritance and signed her DD up to go on a high school photography class trip to Spain and Portugal during spring break and SIL is going as a chaperone. Have they obtained passports yet? No.

I didn’t know it was possible for an adult to be this dumb.

And wasn’t it your mom that had the ‘handyman’ fellow who was wheedling his
way/there to take advantage?

So many thinks can go on with our vulnerable and trusting seniors.

We are still in our big house. I’ve done a lot of declutter (have tons of sentimental stuff though still from my mom). In case where I do opt to keep stuff because we do have room, I try to gather it by categories. That will hopefully make it easier for me (or kids) when/if there is a move needed.

1 Like

I go take care of my mom starting tomorrow for several days while my SIL is on vacation. For some reason, I am really nervous. Dh isn’t going with me. But in mostly great news my brother won’t be working there a couple of days so I don’t have to wake up early to get out of the room where he offices.

In great news, for the first time, my sister agreed to hire a woman to sit with my mom for a couple of hours while everyone else was busy. My brother was still working in the next room, but he can’t care for my mom while he’s taking phone calls so this was a great trial run. My sister said that she wold hire her again. Progress!

10 Likes

That is excellent progress! I hope your visit goes well.