Parents of disabled kids thread...

S was discharged on Friday and has been staying with us. I’ll take him back to his supervised housing tomorrow. He seems good, but we’ll have to see how he does with his roommate, who is a slob. The staff monitors the situation, but it’s still not ideal.

He was in the hospital for 26 days.

Wow—so glad your S is home with you and going back to his apartment. I’m sure it must be challenging for him to live with someone who is a slob. Hope the staff can help things stay as positive as possible.

So glad to hear he is doing OK so far. Hope the roommate situation improves. All the best to him and to you!

Small victory - S broke his glasses months ago and wouldn’t let us get him a new pair. Don’t know what was up with that. But he changed his mind so we took him to the optometrist and ordered them for him this week. Yay! We look for improvement wherever we can find it!

Yay indeed!

One thought, I am severely nearsighted , and if over the years my prescription changed much, my new gasses took some time getting used to - especially in the “big glasses” years of the 80s. Straight vertical lines ( like walls) buldged outward, doors didn’t look like they would match the doorframe, everything was Alice in Wonderland. My brain adjusted after about 3 days. If your son has a big prescription change you might alert him to the fact that things might look strange for a day or two.

@dragonmom, thanks for that suggestion! With his illness, that might be a big issue for him. I will give him a heads-up.

Reluctant Keepers of a Brother With Autism
We have always believed that our twins should take responsibility for their older brother when we no longer can.
https://www.nytimes.com/2018/05/25/well/family/autism-siblings-responsibility.html

Wow, I could have written much of the description of the older brother as an adult. Almost identical situation. So far, our son’s two siblings have expressed a lot of empathy for him and know they will be looking out for him some day. My younger son in Lebanon has told us he would not have moved so far away if we weren’t here to keep an eye on his brother. I’m thankful for the new ABLE account - my son is saving at least $300 a month in a fund that’s getting a return of 10%. He will have a good nest egg.

Fang Jr is going back to school to try to finish his degree. I’m happy about it but nervous.

@“Cardinal Fang” wow! I’ll be thinking of him. Will he be close to home?

My son is doing pretty well. His roommate had let TWO people live in the apartment for a couple of months. It was stressing out S, so I complained. The supervisor said they were having to take legal action. Long story short, the guests AND the roommate are now gone. They said they would give S a private apartment, but he is afraid to be that isolated. So someone new will move in before long. Of course, it will be a guy with serious mental illness, but we’re hoping he’ll be OK to live with.

He’s going to be in Michigan; we’re in California. Yikes.

That’s great news @“Cardinal Fang” ! What do you think was the turning point for him? I don’t recall the nature of his disability, did a new medication help?

The past year has been turbulent for us but things are looking up. We’ve been repeatedly disappointed by the whole mental health establishment, at least the providers in our plan. My daughter’s illness is looking more bi-polar-ish than anything else, but after more than a year she still has no diagnosis. She just started a new part-time job and is trying to get herself back on track. Hope to hear more updates from everyone, it’s been awhile.

@“Cardinal Fang” I hope your son does well. What will he be studying?

We moved from Iowa to California in January. My son was about 15 credits shy of completing an AAS at the community college in Iowa. The community colleges here don’t offer the AAS degree. The AA has more rigorous requirements that my son would have difficulty meeting. Right now we are telling people that he isn’t eligible for in state tuition yet and he is waiting on that.

In the mean time he has found a family doctor, a psych doc and a therapist. The therapist is working on getting him connected with Vocational Rehabilitation to see if they can help him find a job or a suitable educational environment. We are also working on getting him untangled from us dependency wise so that he can qualify for the Job Corps program to learn a trade. Our income is too high, his alone isn’t.

My son has Aspergers, with executive function deficits. The turning point… eh, I think it’s just increasing age and experience.

@MaineLonghorn

Wasn’t this thread pinned? Could it please be pinned?

@DeniseC, it’s still pinned at the top of the Cafe.

I’m about to make a 60-mile round trip to pick up my son to take him to see his doctor. Usually I make the second round trip the same day, for a total of 120 miles. Today, though, I’ve enlisted D to take him home this afternoon. She agreed to, cheerfully!! It’s nice when they grow up, finally.

@MaineLonghorn Thank you but it doesn’t appear to be for me on my iPhone. Maybe it is a glitch on mobile devices.

@DeniseC you might want to report that to @CCadmin_Sorin.

I do see the pinned thread. @DeniseC, maybe you dismissed it by mistake (once you dismiss it, the pinned thread will not be placed at the top anymore).