Parents with T1 diabetics-college close or far?

Thanks for the update, @student4ever:). It sounds like your son is doing very well! That’s great!

The two schools that my son was considering 1 1/2 to 2 hours away are, unfortunately, no longer affordable. The two in our backyard (so to speak) are not high on his list, probably due to major as much as anything else, since neither school has what he really wants to study.

I believe he’s leaning towards Penn, which is far away, with a gap year. Unlike your son, mine has always been talking about a gap year. He acknowledges the need to “catch up” in a number of ways.

I did not want him far away, but if the gap year gives him the maturity, confidence and independence to give it a go, I am all for it. If he goes away and can’t handle it, we can always start over with plan B.

@sbjdorlo Sounds like gap year is a given and it is “just” the college decision that has not been solidified. So, if he’s leaning towards Penn, is there any harm in accepting with a gap year? If he changes his mind about Penn over the course of the year then he just rescinds his acceptance. So much can change in a year! Good luck with the decisions!!

If he is good at self management and knows when to seek medical assistance, then the presence of the teaching hospital conveniently on the Penn campus should be a plus.

D is a freshman two hours away. My requirement was that she be close to major medical resources and that I could get there by car. She is fine but was hospitalized in the fall due to food poisioning and couldnt get her sugars normalized. I was glad to be able to get to her quickly.

@Tmknies, that’s certainly something to consider. If my son is a 6 hour plane trip away, I couldn’t not get to him immediately. What might be good is to have a “surrogate” in place in the event of an emergency. I have a cousin in NYC and a friend who actually works at Penn. Those are possibles. You’ve given me something to think about.

A gap year would give us time to consider these things. For my son, it’s not just the diabetes that’s an issue. There are some other health and learning challenges. He manages his diabetes well, IMO-not perfectly, but well. The pump helps. It’s the cumulative of all his “special needs”, as it were, that cause us to want more time.

@ucbalumnus, yes, having the teaching hospital on campus is a huge plus. One of his other options is UCSD which also has a hospital nearby, but of course, we are nearby UCSD, so we would be able to be there in the case of emergency.

I’ve had to give him glucagon once; I would want someone in his college world to know how to administer that.

Is anyone out there a parent of a diabetic who is attending college far away from home?

I have a friend whose T 1 son is about six hours by car. And he plays varsity lacrosse as a freshman. I have not talked to her recently but everything was going well initially. He is pretty self assured and us not going to drink (he says) regulate his sugar better. I know she is very worried about peer pressure though.

My son is finishing his sophomore year in college, he is a five hour drive away. He plays on a D1 golf team. I was very nervous but he has done well. He shared a dorm room freshman year with no issues, he lives in a 2 bedroom apartment now with a roommate.

When he goes on golf trips they often fly and go directly to the course for practice, he now carries his insulin in a special Coleman thermos that keeps ice for 24 hours, this has prevented his insulin from being heat exhausted. He carries a special “going away” kit that has enough supplies for 10 days, he repacks this after each trip so all he has to do on the day they travel is pack the insulin.

He carries paperwork that allows him to clear security at the airport, his local airport knows him now and he passes through easily.

He is registered at the office of disabilities but has not had to use any of the accommodations. He tells his teachers at the end of the first class that sometimes he “beeps” and he doesn’t want them to think it is a phone. Teachers have been great about allowing him whatever he needs.

He had the stomach flu in February, his endo was great! We did a conference call every 2 hours through the night to help him trouble shoot. Endo had registered him with the emergency room and left instructions should he arrive. This was comforting. His roommate also went out to get him stomach friendly food on his third day and texted me often to tell me “he was looking bad” or today he “looked better”.

Supplies can be a bit of a dilemma in the dorms as they are often misplaced by the front desk, we have learned to not run too low. His A1C has risen a bit since he left home (from the low 6’s to sometimes 6.8). He carries fruit snacks with him in his backpack and in his golf bag.

I worry about him all the time, he used to tell me his numbers if I asked but he now gives me a smart ass answer, which is his way of saying he has it under control. He always tells me his A1C so that is what I use as the barometer of how he is doing. He spends a little more on food than my daughter did because he buys pre-cut vegetables (otherwise he eats less of them). He is learning to cook and his roommate cooks often (my son is more in charge of cleaning duties).

I worried a lot the first year, but this year has gotten easier - that is until he is sick then all the old fears come back and I want to rush to his side.

He too is thin and uses a minimed pump - no CGM (although I wish he would). All the members of the golf team know he is diabetic, his coach is a type 2 but was recently diagnosed and not very well educated yet (often uses my son as his carb counting book).

I did pack a special sick day kit for him this year which was in a little plastic bin in the bottom of the pantry, he was glad he had that when the flu hit.

I created a little booklet called diabetes 101 for the athletic trainers and coaches, he keeps glucose in the athletic training office and a Gatorade in their fridge. He runs 5 miles every morning as part of his training, it had to learn how to eat breakfast to accommodate this as it was more running than he had been doing at home. Several of the trainers have been interested in learning more (including one that joined us for the every 2 hour conference calls when he was sick).

He does go out with others and does drink from time to time. Many may not agree with this, but we practiced him drinking beer at home before he went to college. We monitored him and determined the effect of two beer on his BG, he has a strategy for what to eat if he is planning to have a couple beers. Since he hangs out with a pretty conservative group there isn’t binge drinking or even regular drinking, but they do occasionally have a BBQ and a couple of beer.

Hope this helps.

I don’t know if this helps or not, but my son is a Type 1 diabetic who was 6-1/2 hours away. He was NOT diagnosed with diabetes until spring break of his college freshman year so obviously we weren’t looking at the distance of schools or whether there was a hospital nearby when he chose where to go. However, once he was diagnosed we were happy that the school was in driving distance and that it had a teaching hospital in walking distance of his dorm. After spring break we found doctors there to help manage his diabetes, stayed a week on campus with him to make sure everything was okay, and then left him. I guess we were lucky not to know all the things that could happen to a newly diagnosed diabetic because with what a know now, I would never have had him go back to school. He also has gastroparesis (stomach nerve damage) so his sophomore year he went low, tried to drink soda to bring his blood sugar up, but his stomach stopped working and the soda just stayed there causing a dangerous situation. He was in the hospital over a week because of this. When we got the call that he was going to the ER, my husband was lucky enough to be able to jump in the car to get there. We were ready to pull him out of school then, but my son decided he wanted to stay. It was very scary leaving him there. Luckily he never really was a partier so he really hadn’t done much drinking before his diagnosis and from what he said, didn’t do much drinking afterwards.

Fast forward 2 years, my son graduated last May and right now is working and staying near home. If he was diagnosed before he went to school I might have had a hard time having him so far away. My other two boys are 12 hours away and it did give me pause in case something like this happened to them (remember my 1st was fine when he left for school.) However the school they chose was within the 12 hours driving distance I demanded and had a hospital nearby.

sbjdorlo, you are the only one who knows how responsible your son is and how comfortable you would be with the distance to his college. In some ways I was lucky that my son was already 18 and in college when he was diagnosed as this was never OUR disease to handle but HIS disease to take care of. Sometimes I question how well he is doing this, but he’s now an adult, he knows more about this than I do and he has to live the consequences. I still worry.

{I was just rereading this thread and saw that I posted 2 years ago. Sorry about repeating myself!}

That helped a lot, @Txmom14. Thank you!

Ironically, I don’t know that it’s the diabetes in and of itself that is most worrisome. It’s when he’s sick on top of the diabetes that it tends to get complicated. And it’s not even the blood sugars. His sugars tend to go high a day or two before he gets ill, but then he’s actually fairly stable during his illness. But, he does tend to have a weak consitution when he’s sick. I truly wonder how he’ll be able to handle a serious illness.

He was just ill for 10 days and let me say, he was pretty miserable. It wasn’t the diabetes; it was simply that he was laid flat, sleeping a lot, fever, coughing, needed antibiotics, etc. and got behind in his school work. He didn’t go on his scheduled trip to Penn.

That’s what I worry about.

If he does take a gap year and go away after that, he’ll be 19 and three months when he begins four year college.

I guess you never stop worrying as the parent of a diabetic, but maybe the additional year will help.

I am actually way, way more laxed about his diabetes since he’s had it for over seven years. I seldom ask him his sugars, seldom ask if he checks himself, and the two times he went to visit colleges for three days, I did not worry about his diabetes at all. He did tell me he went high when he was in Boston, and sure enough, that was two days before he got ill.

I don’t get freaked out over a 400 anymore, though it’s not great. The lows after he exercises are concerns, but thankfully, he seems to again feel lows even when he’s sleeping. For a while, because he had them so often, he didn’t feel them. That was scary.

He has a CGM but won’t wear it here. He says he’ll wear it when he goes to college. It would be nice.

@kjcphmom, I don’t know how I would have handled a child being diagnosed in college; I probably would have brought him home.

Yes, it’s never easy parenting a child with a chronic, life threatening disease, but I’m grateful for technology and good endocrinologists.

sbjdorlo, I think we are all frightened when our type diabetic kid gets sick. It hits them hard and to me its unpredictable. A gap year will just postpone everything…imho it won’t change anything. If both you and your son think a gap year is the best thing, definitely go for it. If you both are unsure I would have him go to school and on with his life. I’m actually glad my son stayed in school and am relieved he is now finished. He is living at home, but could have very easily been living anywhere in the states because he said he would go where the job was so my worrying will never be over. But I worry about my other healthy kids too…I guess its what moms do.

No, this gap year is much bigger than just uncertainty about diabetes. I’ve talked about other issues in other posts, and I haven’t even addressed them all. He is the one that wants it for a wide variety of reasons.

Regarding a gap year, be sure to check each school on its policy for deferring matriculation. From what I can tell, UCs and CSUs are generally not accommodating (i.e. student would have to reapply for the later term), but Penn may be more accommodating. Be sure to ask each school specifically before deciding.

Right. I think only Penn (and other privates) allow a gap year. If my son went to a So Cal school, he would not take a gap year. Penn does it on case by case basis. My son needs to lay out a plan to request one should he decide on Penn.

I just wanted to pop in and say my dad has been type 1 for well over 50 years with NO complications except some mild neuropathy that started in his late 70s.

He had a job that often required traveling and late nights and staying in a different hotel every night. He commuted to his office when home by train, so no easy way to get off and get food etc. This was in the days before pumps and pens even. He would travel with syringes and vials, urine test strips and a Hershey bar :slight_smile: Growing up I thought all dads had Hershey bars in their jacket pocket.

He managed to do fine and control everything and he was on his own a lot. One time he was covering a convention and he got low. His coworker knew about his diabetes and convinced everyone he was not drunk and ran out to get some orange juice. That was the only close call while he was traveling.

So it is possible to have a “normal” life. I actually never knew it could be a dangerous condition, to me it was just something to manage. I was aware that we had all our meals at pretty regular times and that dad would sometimes have to eat in a hurry and never ate dessert. But it did not seem to rule his or our lives.

Now as a parent I can see how nervewracking it must be to have a kid with this condition. I always try to tell my dad’s story so people know there are happy endings!

My now DH was diagnosed as a T1 Diabetic sophomore year in college. He was already attending a college 10 hour drive (1.5 hour flight) away. He did fine.

I’d still like to hear from someone whose kid is across the country.

He’s still wrestling with this and needs to make a decision in two weeks. My son goes back and forth. We’re making a pros and cons list today. It will really come down to the school thats 1 1/2 hours away by car vs. the school that’s a day away by flight.

I think a lot can happen in a year. I really feel like he should try the far away school and if he’s miserable, he can come back home or transfer to a school near home. He couldn’t do it the other way around.

Gak. So hard.

Hi @sbjdorlo - we’ve chatted before and I’ve been following your difficult decision - I think this past post answered it best - his opportunity to affordably attend an ivy is a one-way street - if he goes and hates being far away, he can always come back. But he can’t go ivy if he chooses SoCal (except grad school of course). Obviously, he needs to be comfortable doing it, and not be forced, but he has an incredible opportunity that very few kids have. Take the gap year so he’s ready to go away, and let him soar across the country and excel.

My S has a much less defined medical issue that has caused him to miss a total of two months of class during high school (3 episodes), it is auto immune related and triggered by other viruses or infections. He is currently being treated by a specialist team at Stanford who are the only group in the US studying this rare type of disorder. Yet, we are sending him cross country to the frigid northeast. We will just have to deal with it if he has an issue, but he wants to seek out the program he wants and follow his dreams, and we are not going to stop him, despite our obvious reservations and concerns. I think going away is an important part of maturing and growing up w/o your parents nearby and as painful as it may be now, everyone will be better off for it in the long run. I don’t envy the decision you have to make, good luck!

A friend had a T1 son go to college in Colorado (from Michigan). He managed all right, was an athlete so had a coach aware of his condition. Unfortunately, he had too much fun on the slopes so GPA was low. He came back to MI after 2 years. Coincidentally I had 3 friends in the area, one whose dad (now in his 80s) is T1 (and he married a nurse 65 yrs ago–we know she keeps him alive). My friend was his contact should he have needed anything, other 2 friends also on his “list”.

D2 has 2 T1 friends from her sport. One stayed in town for college; she has never been well-controlled so this was her only option. She does live in the dorms. The other went 3 hours away and has done well for the most part. Her parents had a hard time letting her go, but it has helped her mature and be responsible managing her diabetes.

Thank you so much for your post, @Cameron121. It was very, very timely and helpful.

It’s amazing the range of emotions that he and I are having. One minute I am thinking I cannot live with this kid under my roof one more minute and I have failed as a parent because he’s so negative. Another moment, I am tenderly thinking, how can I even dream of encouraging this vulnerable, thoughtful guy to go across the country to school?

I think he has this same swing. In one of our recent conversations, I asked him what would happen if he ended up in the hospital far from home? He said, “What are you going to do? Fly out here and sit by my bedside? I don’t think so. You’d hear about me being in the hospital sooner or later. Someone would let you know.”

OTOH, when I reworked the numbers and figured out that if he lives in a triple and does work study, he could attend UCI, his eyes lit up to have that school back on the table.

So that’s how it’s going in our household.

What you said is absolutely what I think in my head: give it a try. If you’re miserable, you can come back to So Cal and try plan B, but you’ll not get the chance to do it the other way around.

I commend you for being so supportive of your son despite the medical concerns. Are you all putting into place the necessary support before he arrives on campus? What does that look like? You must be so proud of such an independent, brave young man!