<p>I have mostly tried to avoid personal details here, but as the thread continues, I would like to ask for comments about our daughter, from some of the critical posters here, who feel that a selective college should maintain its standards by denying certain accommodations that have been requested by a student with documented disabilities.</p>
<p>Our daughter has multiple chronic health conditions. She is at an very selective college, which she loves. She is an excellent student, and had stellar recommendations in her application from teachers in the performing arts, who termed her a “genius,” “the most talented student I have had in 35 years” and so on. I am not bragging here, I am establishing her right to be at this school.</p>
<p>Her illnesses have different manifestations every few months, and life is a little like putting out one brush fire, only to spot a new one a few yards away, always trying to prevent a forest fire. She does not do any EC’s, much as she would like to, and gets her work done well in advance, in case something happens. Still, the possibility of problems always looms over her, and it is stressful.</p>
<p>Last year, she would lose the use of her right arm for periods of time. This year, she is having seizures (not the kind where you convulse on the floor) that leave her confused for hours, and unable to focus or remember or even spell for awhile, sometimes hours, sometimes days.</p>
<p>It would be easy to say that she should only be at school when she is stable, but she is never stable. Policies on illness are geared to acute illnesses, with the presumption of a return to health, but what about chronic conditions?</p>
<p>It would be easy to say that she should be on leave until the right meds are found, but she did go on leave last year for this purpose (she herself felt that her work was not up to her standards, so she chose to leave) and the meds that provided equilibrium last spring and summer, started to wane in effect a couple of months ago.</p>
<p>She has registered with the disabilities office, and other college officials are aware of her situation. The way it works at her school is that the student works directly with the professors on accommodations. If she is at the infirmary, there is a college official (this year, he is extraordinarily kind and supportive) who e-mails her professors about her absence that day, but otherwise, she is pretty much on her own. So far, she has not had trouble with any professors, but I am sure that at some point she will.</p>
<p>She dislikes accommodations, and, since she has been ill since an early age, prefers to meet standards that are as “normal” as possible. However, the disabilities office has a long list of suggested accommodations for her, supplied, along with documentation of her health problems, by three MD’s. The disabilties office did not think up any way to help her: we researched what might be helpful, and then presented the list as “suggestions of possible accommodations.” I am not sure how they would ever be implemented: there is no system for that. But they are on record.</p>
<p>I believe the disabilities office likes her because she chose to leave, in order to keep her standards of work up. Thus our daughter joined the disabilities office staff as “guardians of the curriculum” as Shawbridge said. This is admirable, but if there is a next time, I believe she would fight more to stay. (She was told that a voluntary leave did not get on her record, and so the implied threat was, that if she did not leave soon enough, it would become an involuntary leave, that did go on her record.)</p>
<p>At the moment, things are touch and go. She had a bad seizure last weekend, and this is the week when papers and presentations are due. She needs to rest her brain, but she is working hard, because there is really not much leeway for her at this school.</p>
<p>If she should get extensions on papers, or extra time on a test, would you all say that she does not belong at the school? Would you say that she/we should have done better research before she applied or enrolled? (The department for her major at this school is the best she could find anywhere. She LOVES her classes and classmates) Her school does not provide incompletes, and she is supposed to graduate in 8 semesters (she has to petition for each extra semester). Could some of these things be changed at the college, voluntarily, to make it easier for kids with chronic illnesses to attend and succeed? How does it hurt anyone to make it possible for a kid like this to graduate with work at the level she can actually do?</p>
<p>At high school, she would miss a huge amount of school, and kept up at home. She took tests when she was able to (usually on time or w/in a week of the test at school). She was one of the top students in the class and, despite so many absences, was voted “most likely to succeed” by her peers. The college was fully informed of her situation before she was admitted. </p>
<p>Can a kid like this finish college at all? How many kids are there like this, who get off their chosen path because the world of elite colleges (and indeed most colleges of any calibre) lacks flexibility, and values competition over assisting students with gifts, but special needs.</p>
<p>You don’t really understand how strong the pressure to fit the tight box of healthy functioning is, until you can’t fit. I don’t really see any difference between our daughter and the plaintiff, and I think many of us on this thread have kids like this. Many of us live with tension in our guts, waiting for something awful to happen.</p>
<p>More of these kids, like my daughter, are thriving in high school thanks to the ADA, and are now entering selective colleges. These colleges are going to have to get with it, and accommodate them. The colleges also admit kids from less than stellar high schools, from lower socioeconomic backgrounds, and those admissions are also promises that need to be kept. Colleges want diversity, but then they also need to provide the supports for students who do display this diversity, whether economic, academic, racial, or through disability and learning style. This is a scary thought for many, who would like their kids to be at an elite school with elite demands, so that they can join an economic and cultural elite after their degree.</p>
<p>Just a few weeks left in the semester. I think she will make it, but I am not sleeping. How many of those who posted the more mean-spirited comments can understand living like this? What do you think our daughter should do: leave and take evening classes somewhere, so that she can withdraw whenever a problem arises?</p>