<p>Just wondering what the experience is of other families/students dealing with chronic illness, that "waxes and wanes" while in college. Our daughter was doing well, signed up for a full course load, and then was forced to drop to 3 classes, because of the time taken up by her illness and treatment. She is now feeling that she needs to drop to 2, or else take a leave. She is fine between episodes, so she can do excellent work while well, but, as already mentioned, the problem is time, to get work done, as well as catch up on work missed while not well (which happens 2-3 days/week). </p>
<p>Taking a leave makes sense for someone with an acute problem that will get better, but it is looking like this is her life, so there is not going to be a point where she can say, "okay, I'm better now." She took a full courseload in the fall (some difficulty) but the winter has been awful.</p>
<p>She is at an Ivy League College with an accommodations office, but they said that, while they deliberate on giving her rare permission to take 2 classes, that their policy is usually to view a student incapable of doing 3, as being too sick to take 2. But that might mean she is too sick to go at all, because she is always going to have problems.</p>
<p>It is possible that this is the last frontier in "diversity" and "equal access," and I am curious to hear others' experiences. She got through high school, missing a lot of school, teaching herself and catching up, at top of her class, and is a very accomplished musician.</p>
<p>She cannot get the specific music curriculum and courses that she needs for what she wants to do, anywhere but a couple of top colleges and conservatories. So extension schools, continuing education, and taking part-time classes as the state university would not work.</p>
<p>Thanks for any input. We sure are tired of being trailblazers.</p>