Disclosing Hearing loss prior to college acceptance?

<p>My daughter has genetic hearing loss(high tone range loss). In middle school she stopped wearing her hearing aids b/c she found she was able to function without them(also gave up her IEP at that time). She's doing extremely well in high school(a junior) without accommodations, other than front of the class seating. She's in the top 10% of her class, all honors or AP classes, National Honor Society, just took SAT's don't have scores yet.</p>

<p>She's looking into "guaranteed seat Pharm-D" programs. Visiting colleges she's finding the large lecture halls to cause her hearing problems that she doesn't experience in highschool. I have an appointment to get her hearing re-evaluated & new hearing aids. </p>

<p>My question is: Will disclosing her hearing disability prior to admission hurt her chances of being accepted into a such a competitive program such as Pharm-D? I know it's not "suppose" to...but honestly...what do you truly think?</p>

<p>Should we see how she does once she gets in & if she has trouble(even with new hearing aids) then disclose it?</p>

<p>I would recommend not to disclose prior to admission, but that you check out the Disability services departments of the schools you are interested in. You can inquire with them about potential accomodations, then upon admission submit the paperwork to them. </p>

<p>I wouldn’t wait until she has issues, be proactive.</p>

<p>Thanks! That’s kind of how we feel about it. But then I started thinking…maybe having a disability & being such a good student may benefit her if the program has “quotas” to fill. Is is possible programs may “want” her more b/c she does have a disabilty & she IS such a great student? And could it make her eligible for more scholarships if she disclosed it prior?</p>

<p>I don’t think there are any quotas, but where it can help is the essay. Overcoming obstacles is always a good thing.</p>

<p>I’m not so sure it would make a good essay because it seems that the hearing loss didn’t present any really serious problems for her in high school.</p>

<p>If it’s mentioned at all, perhaps it should only be in the counselor’s statement or a teacher recommendation. </p>

<p>I also don’t think she’s going to have a huge problem at college, as long as she discloses her disability well in advance so she can get services. Colleges hire students to take notes for people who have trouble hearing in class. And nowadays, lots of course material is online anyhow.</p>

<p>Thanks for your input! I have the same hearing loss as my daughter & I got through college by just asking my friends to take notes for me. Nothing “official” was ever done to help me. I did it on my own by being proactive. But it was difficult at times & I did struggle in some classes to hear clearly. Now technology has caught up & digital hearing aids are great, but still not as good as “real ears”.</p>

<p>A lot depends on what your daughter wants to get out of the college experience.
If she wants to hide her disability and bluff her way through difficult communication situations, that would be her choice. It is not one that I would choose though.</p>

<p>Back in the early 1980s, I went through college using an assistive listening device — I heard about them during my senior year of high school. The disability student office at my college assisted me with registration and also helped to advocate for me if the professors didn’t want to use the ALD my parents purchased for me. With the ALDs, I was able to focus on the professors’ words no matter how far they were standing or walking back and forth from my seat. I used the ALD in combination with the telephone switch on the hearing aid. I love using ALDs because it gave me the freedom to write my own notes and not depend on someone else’s notes.</p>

<p>Today, the range of support services at post-secondary institutions is more than just notetaking. Many colleges will have transcription services like CART and Typewell, and some also have ALDs for loan. At work, I love having CART, it allows me to hear my colleagues questions in addition to the main speaker.</p>

<p>Your daughter should be looking at AMPHL (Association of Medical Professionals with Hearing Loss. ) They have a list of pharmacy schools that have worked with hard of hearing or deaf students.</p>

<p>[AMPHL</a> - Association of Medical Professionals with Hearing Losses](<a href=“http://www.amphl.org/profprogs.php]AMPHL”>http://www.amphl.org/profprogs.php)</p>

<p>[AMPHL</a> - Association of Medical Professionals with Hearing Losses](<a href=“http://www.amphl.org/pharmacy.php]AMPHL”>http://www.amphl.org/pharmacy.php)</p>

<p>PM me if you have additional questions.</p>

<p>Thank you! Thank you! Thank you!!! I will review the links you listed & I’m sure I’ll have more questions for you! She had hearing aids with “boots” in elementary & middle school. Her teachers wore a microphone & their voices went directly into her “boots”. </p>

<p>It was a great set up…but over kill for her small classroom settings. Got to be more trouble then it was worth keeping track of the microphone & charger, etc.</p>

<p>I wear smaller digital hearing aids(Resound brand) without the “boot” capability. She wants something like I wear b/c no one notices them. But I know they won’t be as effective as the BIG hearing aids she used to have. And they don’t have the “boot” capability.</p>

<p>I have to research about ALD’s, CART & Typewell. So much I have to learn! So much has changed over the years. Thanks so much!</p>

<p>ALD’s can make a huge difference. One of the kids at D’s high school with a profound hearing loss was able to adequately hear teachers who were using the ALD without needing a sign language translator. Big difference. </p>

<p>Mine is not nearly that severe, but I did struggle with hearing professors with mustaches/beards, those who put hands over their mouths (as if they were trying to lecture and pray simultaneously) and especially those who spoke with their backs to me, as many do when using projection devices. Even if there are ALD systems available for lectures, I’d suggest that your daughter get some help learning to be assertive about seating – especially in smaller seminars where it isn’t uncommon to have everyone seated at a long rectangular table. I’ve never had anything but gracious reactions when I have spoken to professors or seminar leaders. I tell them I have a hearing impairment, and that it is challenging for me to hear people when I can’t see them speak, and then ask where they expect to sit/stand/lecture so that I can choose a seat that will give me the best chance of accurately hearing the discussion/lecture. Labs are another area where some self identification is helpful. </p>

<p>And on the safety front: How’s her hearing when sleeping? My dad (whose hearing was worse than mine) really needed the strobing smoke alarm. Not expensive, and when we tested it he had no trouble waking.</p>

<p>There are a lot of new products out there now, and I suspect that there are some that are a big improvement over what she may have had in elementary school.</p>

<p>My D is totally deaf in one ear and because she was auditioning for music performance (instrumental) we had to disclose it. We found out later that the professors doing the audition had not even been told. She has difficulty when a large number of people are talking at the same time because all sounds hit one ear at the same time and she can’t differentiate where the sound is from. Because she attends an LAC she was worried about classes that she was not as strong in so she made arrangements through disability services to get permission to audio record those classes, the Prof thought that was great idea and had no problem at all. It gave her that ability to listen to the class again if she was not sure about something.
I can understand some telling you not to disclose before being accepted. Good Luck</p>

<p>Percussiondad, I find it so interesting & wonderful that your daughter excels in music! My daughter is also a singer, plays piano & exels in foreign languages…things you would think a hearing impaired person would stuggle with? I think growing up with a disability…they never see it as a disability. It’s just who they are! I think it’s wonderful!!! </p>

<p>The type of hearing loss my daughter has is progressive…but over many years. Last time she had a hearing test they explained it this way…“As a teenager, she has the hearing of an old person & it will slowly progress over her lifetime”. I think she has noticed a “bump up” in her hearing loss lately. I’ve found her watching TV with the closed caption on alot. She has an ENT & audiologist appointment on Tues. I’ll have LOTS to discuss with them now!</p>

<p>Thank you all so very much!!! :)</p>

<p>Apologies in advance for this epic-length post.</p>

<p>This thread is a busman’s holiday for me. I work as a deaf/hard of hearing (DHH) hearing itinerant teacher for many different high schools.</p>

<p>First, ALD = Assistive Listening Device, but they’re often still referred to as “FM systems.” You’re right. All hearing aids are not compatible with ALDs. This means no teeny-tiny completely-in-the-canal hearing aids. You need to attached a “boot” (also known as an “audio shoe”) to the bottom of each aid, which then allows you to attach a small FM receiver that communicates with the FM transmitter (microphone). Some newer hearing aids have “integrated receivers,” which means you don’t have to attach anything; the integrated FM receiver automatically turns on when the FM mic is switched on. </p>

<p>Increasingly, there are ear-level systems that can be used by NON hearing aid users. These earpieces amplify without being attached to a hearing aid, which means there’s no attention to boosting only specific frequencies. You have the option to get custom earmolds made for some models. Phonak makes the iSense and the MicroEar; Oticon is getting into the FM game, so probably also has a model.</p>

<p>Or, if you have an iPad and $4, you can get the SoundAmp app, which is very primitive, but I know of at least one HH college student who is using it during lectures - to both record the lecture and to listen to an amplified signal through ear bud(s). Since this would amplify anything around the iPad-on-the-desk, it wouldn’t be nearly as sophisticated as an ALD, but this student (deaf in one ear) likes it.</p>

<p>In my experience, there is no reason not to disclose a hearing loss on a college application, although I know many would disagree with me. Many of my students mention it in their essay, personal statement, or an “other information” section of the app. In fact, I had a very high achieving HH senior last year who won a crazy-generous community scholarship. At both interviews, he was asked about his hearing aids and how he has navigated his hearing loss. He definitely got the idea that the interest was anything but disapproving. </p>

<p>To register for disability services, colleges want a current audiological evaluation for documentation - less than six months old. Many students also supply an IEP or 504 Plan. You daughter should register with the disability office before she begins classes. She can generate a list of accommodations with her disabilities counselor (e.g. preferential seating, FM, captions, notetaking assistance). </p>

<p>Students who are registered with the disability office are often allowed to register for classes before the other students, which can be an advantage if she wants to sign up for a section of a class with fewer students or located in a good building (acoustics).</p>

<p>Many disability offices provide FM systems, although they’re not necessarily top-of-the-line. My experience is that colleges that have audiology, speech path, or deaf ed departments often have a lot of knowledge about DHH students’ needs and equipment. This is not to say that there are not other colleges that don’t (if you can decode that triple-negative sentence I just wrote…)</p>

<p>As you visit colleges, you can contact the disability office ahead of time to alert them to your visit. Often, they will agree to meet with you to explain their services. Sometimes they’ll introduce you to an already-enrolled DHH student. (If they have one…it’s a pretty low-incidence disability.)</p>

<p>You should consider whether you want to transition to new aids and/or an FM while your daughter is still in high school, considering that it takes a while to gain tolerance. It also helps to have an established history of using certain accommodations. In addition, high school is a warmer, fuzzier place to get practice in how to explain equipment and other accommodations to teachers. </p>

<p>To get an FM in high school, you daughter would have to be referred (probably by the special ed department or the nurse) to whomever provides your hearing itinerant teacher services. That provider will do an evaluation to determine if services are needed and if an FM is warranted. The conclusions will be formalized at an IEP or 504 Plan meeting, where ideas for accommodations will also be generated. If initiated, services would probably be minimal and focus on self-advocacy development and accommodations/equipment use. The more forthcoming a student can be about her hearing needs, the better. </p>

<p>(Even if the hearing itinerant evaluation determines that your daughter is using her hearing so well in the classroom that an FM is not recommended, you can always purchase one on your own - actually, through your audiologist.)</p>

<p>Random thought: I have many former students report to me that they struggle with the foreign accents of professors in college, especially Asian and Indian.</p>

<p>Sorry for the ramble. Good luck!</p>

<p>I forgot to say this: there’s a third option to what you asked</p>

<p>You said:

  1. Disclose hearing loss in app
  2. Don’t disclose and wait to see if any problems arise. If so, get help.</p>

<p>There’s also
3. Don’t disclose and then just sign up with disability services when she enrolls. You can even visit the disability office during a visit before applying and STILL not disclose it on the app.</p>

<p>

My son has a visual disability which seems like just a little bit more of a problem than your daughter’s hearing disability. We thought about this a lot too. In the end, it was just mentioned in the counselor note and he didn’t say anything about it at all. IMO, he had no advantage or disadvantage, but I don’t know. He did extremely well in admissions, but I don’t think his vision made a difference. It did help him get further in a couple extra programs, but both of those were post-admission anyway. </p>

<p>I agree with Marian not to focus on it in an essay - it wasn’t an issue because it wasn’t that severe/she had small classes/ whatever, so there was no “overcoming difficulty”. It would seem forced coming from her.</p>

<p>

My son didn’t have those concerns. But pre-emptively, his optometrist told him “you can look silly holding a telescope to see stuff, or you can look sillier trying to fake your way through life. Use the telescope and be a part of life.” Also, my husband has significant hearing loss. He tries to fake hearing a lot, by not asking for clarification enough (he has big hearing aids) in social situations, and he misses stuff and, IMO, his life is less for it. I’d work on getting your daughter to not try to hide it.</p>

<p>Advance disclosure is not necessary at all. But as others have said, be sure to see if the disability office seems helpful.</p>

<p>Good luck!</p>

<p>Astonished, you can ramble to me ALL you want & I will hang on every word, LOL! Thank you so much! You know exactly what our situation is! You’ve given me much to absorb.</p>

<p>I agree that getting her comfortable with hearing aids, etc. while in highschool is very important. She’s a junior, so will have all of next year to experiment too. Also, we just recently got an iPad, I’ll get her to try out that app!</p>

<p>She gave up her IEP b/c she wasn’t using any accomadations in middle school(except asking to sit in the front of the class). I’ll talk to her highschool support services to see about getting that reinstated. Especially since she’ll be getting new hearing aids & possibly some type of FM system. She hasn’t worn any hearing aids for about 4yrs now, she’s been sucessfully “winging it”. I didn’t want to force her to wear them as long as she was functioning ok. I knew she’d let me know when she was “ready” & wanted to get them again. She’s mature & realizes that she needs them at this point.</p>

<p>I’m going to have a long conversation with her audiologist about what hearing aids & other devices she thinks will be best.</p>

<p>I also like your 3rd option idea! See, she doesn’t really see it as a “disability”, so to make a “big deal” about it to colleges just isn’t her. She has always just dealt with it. I guess that’s why I’m so torn about bringing it up to colleges. I want her to be successful in college & in her career later on. But whether she really wants to admit it or not…she does have a disability…she’s not competeing on a level playing field with other students. She’s working harder just to hear & comprehend what’s being said. She’s doing it well obviously, at least so far. But she is noticing herself struggling more lately even in familar environments. I want to make sure she’ll have help in college if she needs it.</p>

<p>My other question is: Do universities have diversity “quotas” to fill? Would having a “disability” of hearing loss possibly be seen as a good thing?</p>

<p>Thanks so much for you input GeekMom63! You must have been posting as I was still typing my last post. </p>

<p>You have great insight!!! I know even with my hearing aids I still struggle at times. The hearing loss my daughter & I have also distorts sounds. So just making sounds louder doesn’t fix everything. Sometimes no matter loud sounds or voices are, it still doesn’t matter… since it still sounds like how the adults talk in Charlie Brown cartoons, LOL ;)</p>

<p>So glad things have worked out so well for your son! I agree acceptance is key. My daughter “accepts” she has hearing loss & now she accepting that she needs help(hearing aids). I’m proud of her. We are such a visual society…so many people see big glasses or hearing aids & form incorrect 1st impressions. Our kids don’t let it hold them back & that’s something everyone can learn from them.</p>

<p>Good thing I’m on spring break! Actually, I hadn’t been here in a year, but CC sent me a birthday email, which made me giggle and log on for old times sake and boom! there was your post. Weird. <cue spooky="" music=""></cue></p>

<ol>
<li><p>Disability Quotas: Nah, colleges don’t do that. That said, my personal opinion is that if schools are interested in a VARIETY of talents and experiences, they are also interested in a VARIETY of challenges, especially if the student has succeeded despite the challenge. Hearing loss is rare in children (1 in 1000 of kids younger than 18), so I think it makes people take notice, unlike increasingly common disabilities like ADDHD or LD. Again, this is just speculation, but much of the opinion offered on this site is speculation, right? </p></li>
<li><p>Self-identifying as Disabled: I’ll send you a private message about this later.</p></li>
<li><p>Big, BIG Hearing Aids: You might be surprised how small BTE (behind the ear) hearing aids have become. Ask your audiologist about open fit aids, domes, and any other cool new gizmos. Last week, I chided a high school student for not wearing his aids. Turned out he had them on… (And he uses an ALD.)</p></li>
</ol>

<p>Astonished, I’m a BIG believer in “everything happens for a reason” :slight_smile: Thanks so much for following that little birdy in your head that made you log in today!!! :)</p>

<p>I was actually kind of worried about posting my questions here. I know “disabilities” can be a sticky topic for some. I didn’t expect anyone would reply. This was my 1st thread and everyone who has replied has had great insight! Thank you all so much!</p>

<p>It’s so nice to have all of this support here as we explore her next steps along her path to college.</p>

<p>

And even if it is a handled challenge, an increasingly inclusive society needs employees that represent the customer base. I remember a few years ago reading that a deaf / hard of hearing Google employee got frustrated with youtube and started working on a captioning system. For Google, then, this employee’s disability was an advantage.</p>

<p>Hello gymnasticmom and percussiondad:</p>

<p>Among the many hats I wear, I run a small nonprofit for adult musicians with hearing loss. Here is the website: </p>

<p>[Welcome</a> to AAMHL!](<a href=“http://www.aamhl.org%5DWelcome”>http://www.aamhl.org)</p>

<p>(I should add many members in my group have bilateral hearing loss. Not sure how applicable that is to your children’s situations though.)</p>

<p>Gymnasticsmom, you might want surf over to PEPNET. </p>

<p>[Postsecondary</a> Education Programs Network - pepnet 2.0](<a href=“http://www.pepnet.org%5DPostsecondary”>http://www.pepnet.org)</p>

<p>They have an extensive section on reasonable accommodations for hard of hearing students in post-secondary settings. For example:</p>

<p>[Comparisons</a> of Speech-to-Text Systems - Fall 2008 Perspectives Newsletter - pepnet 2.0](<a href=“http://www.pepnet.org/newsletter/2008_fall/page6.php]Comparisons”>Pepnet 2)</p>

<p>A lot of their tipsheets and PDF files are not online (weblinks to PDF files are broken), so you might want to contact the PEPNET staff for copies.</p>

<p>Hope this helps!</p>