Parents caring for the parent support thread (Part 2)

My dad died when he was having last rites administered to him for 2nd time. He was very peaceful and had several family members present.

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I think the AIL and UIL want you to think they are coming but itā€™s probably something they canā€™t do. Not because they donā€™t want to but because these things are very difficult to do. And so there are so many problems.

Itā€™s ok.

Your husband is there. The cousin came.

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Yesterday was exhausting. Made it to assisted living facility. Itā€™s a very nice place. Very clean. You could eat off the floors kind of clean.

MIL is really struggling to breathe but I could tell that she recognized the 3 of us (me, DH, Cousin). Cousin is very glad she came.

Ended up having to drive through a microburst of a monsoon rainstorm to get there. Traffic going 25 mph on the freeway and it was like driving in a hurricane. White knuckles and all. At one point I literally couldnā€™t see the road at all. And then at the assisted living facility, it was bone dry. Thatā€™s AZ for you.

MILā€™s hands are curled up like she canā€™t move them anymore. She had her CPAP on but was awake. Breathing with her mouth open.

DH and cousin are going there again today.

First night back at my momā€™s, and it was a doozy. She was great until about 6:30, when she found a purse and said she was going home. Apparently, this is her new thing. Gosh, it was awful. Dh and I blocked the doors so she couldnā€™t leave. My brother said that she usually will eventually lie down and wake up and then has forgotten the whole obsession. She wouldnā€™t nap for me, but eventually slept on the couch until she went to bed. She has a doctorā€™s appointment at 9 in the morning. I have no idea whether sheā€™ll be in shape to go.

It sounds like sheā€™s sundowning - anxiety, paranoia, hallucinations, etc., around sunset. It can be so incredibly hard to create a diversion or distraction. I hope her doctor has advice in the morning. My mom had Zanax that I could give her as needed for those agitated, paranoid evenings.

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Oh, that sound like a tough situation - hope it was a quiet night afterward.

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DH & MILā€™s cousin had a hell of a day yesterday. Cousin flies home tomorrow. I took today off of work, DH is working today.

A miracle happened yesterday. AIL & UIL showed up after a week of vacillating between ā€œWeā€™re coming!ā€ and ā€œOh, weā€™re not coming today! Tomorrow for sure!ā€ DH said that the entire day was a comedy of errors with them. He & Cousin escaped around 6 pm, got back to our house at 7:30 pm, after which DH & Cousin downloaded about how it all went. Here are some highlights from the circus:

  1. Cousin said MILā€™s condition deteriorated compared to the day before. No longer responds when you talk to her, doesnā€™t squeeze your hand, no arm raising like day before. Color/pallor has changed. Cousin said her skin looked a little yellow and tips of her fingers were blueish.
  2. DH had previously told MIL that AIL & UIL were trying to get there. Now that AIL & UIL have visited her, I think MIL will die before the end of this Labor Day weekend.
  3. Thankfully, AIL & UIL werenā€™t totally disruptive at the assisted living facility.
  4. At MILā€™s house, AIL & UIL spent hours talking about getting old and all of their ailments. Discussing the Six Ways Heā€™s Going To Die is UILā€™s favorite topic of conversation.
  5. Cousin thinks that DH deserves an award for how patient he was all day w/UIL & AIL.
  6. AIL has celiac disease, so canā€™t eat gluten but now apparently sheā€™s on some diet where she canā€™t eat fruit at all either?!
  7. They drove all the way here from San Diego area in their RV van but despite the RV van having storage & a minifridge, didnā€™t bring any food with them. And then got irritated that MILā€™s house had limited options of food for them to eat. Even though they didnā€™t give anybody a heads up of what their food needs were or anything like that. On their ~6 hr drive here, they passed many towns with grocery stores, yet didnā€™t manage to actually go into one.
  8. UIL still remains petrified of getting COVID and, as a result, refuses to actually go into a grocery store. AIL wonā€™t go into grocery stores, too. They asked DH if they can get groceries delivered to MILā€™s house. No. MILā€™s house is on the outskirts of town and there are no grocery stores which deliver there. Cue them ordering DH to take a list from AIL, drive 20 min to grocery store, pay for their groceries, and then return to MILā€™s house. UIL is petrified of getting COVID and dying in the grocery store, but is apparently fine w/my DH catching COVID and dying in the grocery store instead. :roll_eyes:
  9. Lots of complaining from AIL about the heat. Acted like she was going to die of it the entire time.
  10. AIL brought her cat w/them even though DH told them not to. MILā€™s 2 cats are still at MILā€™s house. UIL accidentally put AILā€™s cat in a bedroom w/1 of MILā€™s cats. MILā€™s cat totally traumatized by this.
  11. Because AIL is going to die from the heat, AIL & UIL are leaving some time tonight. In order to make sure that they donā€™t blow up MILā€™s air conditioner from turning down the temp to North Pole levels, I am spending the night tonight at MILā€™s house to: (a) turn the AC back to its normal level; (b) spend some time w/MILā€™s cats; (c) sort through some of MILā€™s stuff; and (d) make sure that AIL & UIL actually lock the front door when they leave.
  12. AIL & UIL both have iPhones. DH gave them address of assisted living facility. Instead of using iPhone map directions, they decided to follow DHā€™s car instead, but then proceeded to drive so slow that they lost sight of him and got lost a few times. Many times, DH ended up having to drive 25 mph in a 45 mph zone just for them to catch up to him.
  13. AIL demanded COLD water with ice in it. Ordered DH to get her some ice. Guess what? MILā€™s fridge doesnā€™t have ice maker, and there were only 4 ice cubes left. DH said youā€™d have thought that the world was coming to an end because of this.
  14. AIL pushed a lot for memorial service to happen ASAP after MILā€™s death (MIL will be cremated).
  15. AIL pushed a lot for there to be a 2nd memorial service in southern CA, despite DH reminding AIL that MIL actually didnā€™t want any memorial or funeral service at all. Great, AILā€¦if you want a 2nd service, have at it. None of us will go to it.
  16. AIL pushed DH hard for there to be a ā€˜graveside serviceā€™ for wherever MILā€™s cremated remains are put, despite the fact that where the remains end up is still TBD. Meanwhile, MIL is still technically alive during this entire discussion.

SIL is probably going to be here all next week.

We love AIL & UIL very much, but we are all out of spoons right now to give a care about their manufactured drama. If youā€™re exhausted from reading all that, Iā€™m right there with you. I have no more cares to give right now about AIL & UILā€™s nonsense.

AIL/UIL ā€” which one is your MILs sibling? Sounds like ā€œdemanding and difficult when stressedā€ is in the dna. You are doing a good job , for sure, of being a problem solver and not a problem creator.

Iā€™m so sorry for all the drama complicating grief. My dadā€™s sister was a bit put out because (wait for it) the obituary listed her nickname, not her given name. She tells me this with great expectation of sympathy, and I said ā€œI understandā€ for the billioneth time that weekend. Just those words. She was sad, and afraid of being forgotten. Grace to all.

(My DH and S2 are celiac. We would never, ever, ever, travel without food. Never. )

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Nickname issue reminds me of how upset SIL was when her dadā€™s obituary had the last town her son lived in rather than the current town. First of all, so?? And second, while I donā€™t recall who wrote the initial draft, SIL edited it - so she clearly missed it. But her being upset was not really because the obituary had the wrong town. That was just a reason to vent at a time she needed to express her feelings.

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Sorry the AIL/UIL are being so unreasonable. I think sometimes when dealing with death of a loved one, there is unconscious shift to try to control things/people that can be influenced.

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I am so glad you are able to vent here. Best to you and yours in the tough days ahead. :heart: :heart: :heart:

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MIL died early this morning. :frowning:

Sympathies to you and your family.

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Sorry - this was meant for @sbinaz : She hung on long enough for AIL & UIL to visit. Peace to you and your H as you move through your grief.

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Condolences to you and your family. Iā€™m glad everyone got to say their goodbyes. May the good memories sustain you all in this difficult time.

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Iā€™m so sorry :cry:ā€¦ peace to all of you. So glad AIL and UIL were able to see her. Hugs.

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Wishing your family comfort. Sorry for your loss.

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My deepest condolences to you and your husband.

Condolences @sbinaz ā€” glad you guys survived the visit and that your MIL was able to be visited by important loved ones.

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Sorry - it must be tough, even though it was expected. Wishing you and family peaceā€¦ and stamina too for the upcoming tasks.

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