I think the J and J is the vaccine that poses risk to those with ITP.
AgainâŠthere isnât consensus on that. The J&J is for sure out. But the MRna might be out also.
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Conversation has been civil and as long as that continues the thread will remain open. As for links, we do not have a team of people or an AI (like FB) vetting all the links, so posting any controversial links will be subject to flagging and removal by the community.
For those that would prefer to skip this thread altogether, setting it on âMuteâ would be the best option. Let me know if youâd like assistance on that option.
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What do the ITP support organizations recommend re: covid vaccination? If the vaccines arenât an option, seems like those with/at risk for ITP have 3 options: risk getting covid, risk the vaccine, or stay home/be extremely careful about going out into society/work, etc (even riskier now with Maxâs is coming off in many places). Tough decision with imperfect information regarding the relative risks of each choice, which is typical of many diseases, treatments, and vaccines.
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Everybody concerned has had Covid, so the risk of getting it again is reduced. It isnât clear yet, from the research, what about the vaccines make them riskier for people with ITP. They have seen ITP reactions from the mrna vaccines also - though fewer than the J&J. So, for us, I think waiting is a reasonable strategy.
Personally, I agree that decisions like these should be up to the individual and their doctor.
Thank you for writing my thoughts. Anyone not interested in any thread doesnât have to read it. I like seeing and knowing what is out there (fully vaccinated myself + family, and glad of it).
I want to know what those around me choosing not to vaccinate base their thoughts on, medical, conspiracy, or any reason. It helps me understand them (and potentially educate when Iâm able). Pretending âbadâ reasons donât exist does nothing to help. Pretending one knows their arguments without actually seeing/reading the basis for it doesnât help either.
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My husbandâs rheumatologist had the same advice. My husband has psoriatic arthritis and Crohns.
Are there any studies that say who shouldnât get the Covid vaccine? It seems that there is some disagreement among the experts?
I canât find anything from the CDC. A guide from the UK states, âThe vaccines do not contain living organisms, and so are safe for people with disorders of the immune system. These people may not respond so well to the vaccine. A very small number of people who are at risk of COVID-19 cannot have the vaccine â this includes people who have severe allergies to a component in the vaccine.â
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Thanks so much. Iâm understandably nervous about my husbandâs condition and he contracting Covid. So I try to read what I can.
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As a licensed broadcaster I donât agree with your description of it as a âvideo.â At 55 seconds itâs a video clip. If it was much shorter it would be a soundbite. I disagree with your interpretation of the content too. None of the speakers said there was âreluctanceâ at their agencies.
They didnât even hint at it. Sources absolutely matter. Theyâre presenting a video clip with leading headlines to sway people who arenât astute enough to know better. The video they presented doesnât support their headlines at all:
Faucii said he thought 60% of their employees (not medical professionals, but all employees) had been vaccinated. He wasnât asked what percentage of employees were eligible or where his data came from. If only 75% are eligible and immunizations are happening both on site and off and not being tracked then the data doesnât mean much. He didnât say anything about what his employees think about the vaccine and he wasnât asked.
Marks guessed 60% too, but said he didnât know for sure because some employees were vaccinated on site but others werenât. He also didnât say what percentage of staff were eligible or what the employees think about the vaccine.
Walensky said she doesnât know what percent of their employees have received the vaccine because they arenât keeping track. Businesses arenât required to collect that information so they arenât gathering it. She wasnât asked what her employees think of the vaccine and she wasnât asked.
I think that the headline and subhead are intentionally misleading. There was a reason they chose to say Fauci and Marks âadmitâ rather than âreportâ or âstateâ and substituted âmedical professionalsâ instead of the shorter (and actually accurate) âemployees.â If it wasnât intentional then theyâre just seriously bad at what they do.
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Thank you for your post. Thereâs a Facebook group called âMaine Journal Newsâ that posts anything but news. Itâs discouraging that people fall for this stuff (censoring myself).
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Ugh, thatâs tough. I donât envy people making tough decisions. The daughter of a close friend is expecting twins in July and told me she decided not to get vaccinated. I donât agree with her decision, but of course I didnât say anything. Itâs her choice.
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And Iâd bet that Fauci and Marks are just making educated guesses. With the masses of federal employees still working from home, Iâm sure that they have little data on which to opine. They could have been much more accurate with their response as in, âwe have thousands of employees working across multiple states, so our tracking is limited by location and time zones, but one(?) internal survey indicates that 60% of DC/MD/NoVa? employees are now fully vaccinatedâŠOTOH, we believe 80%(?) of all medical professional are vaccinated.â
My husband was vaccinated as soon as he could. Never any hesitation from him as he likes and trusts his rheumatologist. Iâm the one who worries.
But these decisions are difficult.
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My neighbor had Chrons and got the vaccine as soon as he could. His mom is a lung doc and encouraged his prompt vaccination. He said heâs relieved to be fully vaxed and did not complain of any side effects.
My other neighbor with MS and others who are cancer survivors also got their vaxes as soon as they could (as urged by their MDs) and also had no problems.
My good friend has chronic ITP and got the J and J vaccine. She works in a school and got the vaccine the first day she was eligible and before the news about the strokes etc. Due the her condition she monitors her platelet numbers often but after the news she asked for more monitoring. Thankfully nothing happened. Her numbers remained constant the whole time. It is now 2 months. She also has chronic vertigo that comes and goes unexpectedly. One time she got a bad vertigo case a few days after the flue shot but another yeas she did not. It is hard to make conclusion like this. For the J and J vaccine she got nothing. She told me for years she is trying to find the vertigo triggers (keeping a journal etc) but still not sure.
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Apparently by about 80.5%, but only 47.1% for age 65 and older, according to https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)00662-0/fulltext .
Other studies have found that production of antibodies against the receptor binding domain of the spike protein is quite variable after natural infection, though you could at least theoretically get tested for the level of antibodies you have. Natural infection also tends to cause production of antibodies against the nucleocapsid protein, which do not neutralize the virus (but may increase the risk of antibody dependent enhancement of subsequent infection).
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Very helpful article in todayâs NYT based on research as to why people are vaccine reluctant, and how to address that, in different states.
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Yes, I saw that and agree.
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There was an article in the Maine newspaper on Sunday regarding vaccines, and getting them out. The town of Turner has the lowest %age of vaccinated folks and the highest %age of Covid cases per.
Is this a coincidence?
Folks were interviewed and not a single one supported getting the vaccine.