Parents caring for the parent support thread (Part 2)

It’s behind a paywall for me so can’t read it.

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Today is Local Sibling’s second attempt at getting Mom/Dad’s bloodwork done. Last week they made an attempt, long story short, many (avoidable) miscues sent them home with only part of it done. I kept my mouth shut.

Dad’s oxygen tanks last about 50 minutes. The hospital lab is about a 30 minute round trip drive (not counting the actual time at the lab) getting Dad to the car is about 15 minutes…when DH and I were there this weekend, he showed her several times how to manage it (turn it off,on, she wheeled it around, got it up and down the two steps) but of course Dad was not attached.

LSib plans to put Mom in the car first, to keep her out of the way, then load Dad. I suggested that he just ask for help at the lab with changing the tank rather than all of them losing their minds. He was surprised that “was a choice” and I kept my mouth shut.

Preferred Sib leaves for a 3 week vacation today. Mom has circumvented all attempts to make her life easier and when PSib starting talking ways to manuever her into not doing that, I kept my mouth shut.

Currently in “if they want to be impossible, then fine, be impossible” land.

That was a very interesting article!

Here’s a gift link that I found on Reddit:

https://www.reddit.com/r/dementia/comments/13goql7/the_mother_who_changed_a_story_of_dementia_gifted/

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Now that I am retired, I did take out an introductory year of New York Times, but don’t plan to keep it after the year. I do like to look at a few sections, but the full cost is OK if one doesn’t spend a lot on other things – we spend a bit with DirecTV and I have other sources of news. So, it is a bit of a ‘luxury’ for me that I can’t justify paying full price.

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Every year is an introductory year for a subscription to the New York Times.

You can do it online. Once the year is up or beforehand, try to cancel. They will offer you the same rate you were paying. Works like a charm.

Just have to be proactive with subscriptions. Same thing with Sirius radio. I do it all by online chat.

I like to support journalism. Can’t support them all, but support what I can.

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I will try that. I do renew Sirius radio at a very low price every year - have it marked in my calendar.

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Our neighbor came over today and asked us how to get the lower annual subscription rate we were offered. Their offer for a year is >$600 and ours is <$300. I told them just call the paper can tell them they want their subscription rate to match our lower rate. I gave them a copy of my invoice.

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Are you talking about a hard copy of a newspaper? (NYT???)

I pay $7.50 for digital access/month. $90 year

It’s both hard copy and digital access for our local paper, Honolulu Star Advertiser.

That’s a good price for NY Times!

The introductory offer I believe for NY Times was $1/week (digital) with access to all the other stuff. But good to know about the other digital access pricing when it comes to negotiating renewal. I have it marked on my calendar, as it will automatically go to the high rate with auto withdrawals if I don’t intervene.

I’m so sorry. That first time when my mom didn’t know me, or know she’d had a husband, or had kids- all such heartbreaking moments.

Dad’s been admitted to their hospital, breathless and in distress. He’s supposed to have an iron infusion on Wednesday at an entirely different clinic much further away; I am trying to coach Local Sibling thru seeing if that can be moved to where he is. But I am mindful of how you all have felt the absent sibling gets bossy, and am being gentle with suggestions. I asked Preferred Sibling if I should cancel a planned trip later this week to go help Mom and he said no, she will sleep if nobody is at the house and we agreed sleep is good for her.

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Glad to hear that local sibling is trying to navigate this situation. You offered to come and help and you’ve been very generous with your time.

I think your mom will sleep well

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Mom called awhile ago, she promised to stay off the stairs (laundry in the basement, gives me nightmares) and said she was going to watch “anything that isn’t a western” and go to bed. Ihave a to-do list and have my fingers crossed that LS will not let our mother drive out and back twice a day for 5 days…

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If the breathlessness is from iron deficiency anemia, the hospital will probably give him an iron infusion. If hemoglobin and hematocrit are seriously low (hemoglobin 7 or less) they would give a blood transfusion as well. Went through this with my mother. Iron infusions caused nausea and vomiting so zofran beforehand can be helpful.

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@greenbutton since I can’t reply to your say it here, I’m replying here

I am so sorry you have to cancel your trip. I am so sorry that one of your siblings (I’m going to guess local sibling) left your mom at the hospital all day.

I am so sorry for all of this. And the stress.

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I was coming to say the same thing. Are you sure you have to cancel? Can’t you talk to LS?

well, I love you all so much…

…DH , S2 and I are deciding what makes sense. We may cut a day off visiting S2 (and we’ll see him in August so it’s not like it’s the only chance, but we wanted to see him/SO at their home). That means no stopping to see friends on the way back. That only gets me to Mom 48 hrs sooner. I know in my heart I should just cancel the whole thing but I am so, so angry I need to wait. Maybe LS did go out and talk to doctors? Maybe? LS is a good person, but even PS has used the word “oblivious” and LS takes direction poorly. Doesn’t “like” medical things. (I have a lot of experience as a patient advocate and so far every time Dad’s hospitalized, I do that for everyone)

I will see my mother tomorrow in person. I have told her, LS, and PS all that they can arrange rides for her until Dad is released, but she cannot be driving (ran at least one red light following the ambulance) in this state. I will take her keys if I have to.

Dad told my mother today that he supposed maybe it was time to think about a nursing home, so there’s that. Thanks guys.

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Can someone local arrange Lyfts for her?

Aside from this issue, sounds like the keys need to be taken away anyway.

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There are no Lyfts, Uber, taxi where she lives. I am giving myself time to calm down, and LS time to tell me arrangements have been made, before I do it myself. A couple of my mom’s quilting friends have offered before to drive her, but she is very stubborn and sees having help as being a burden (which of course, is very self fulfilling)