Parents caring for the parent support thread (Part 2)

That’s very true and I agree. I got lucky I guess–I have a medical background (so easier to make those “priority” decisions). But my point still stands–at some point even with that background there is a point where no professional following orders is better than a loved one who actually cares and is able to give autonomy to the one being cared for.

When my dad was in the hospital I ran across way too many “professionals” (yes, in quotes) who only wanted to check off on their “to do list” rather than consider the patient in the bed.
(LOL–can you tell I’m still mad?)

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A suggestion for having pills easier to swallow is for them to curl their tongue so that is has a pit in the middle after they put the pills in their mouth and when they are taking their drink of water. Also tip the head back a little after water is going in the mouth. Even if you take a few pills at a time with this method. Often men are very proud and want to swallow the pills w/o aid (like apple sauce to help with swallowing).

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When my daughter was in Kindergarten and needed to be treated for latent TB and take pills, I told her to pretend the water was a waterfall and the pills were fishes swimming down her gullet. It worked!

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A family member had a stroke recently that impacted her ability to swallow. A therapist has her swallowing pills with something a bit thicker than water - apple sauce, yogurt, etc - and then tipping her head forward as she is swallowing. It seems to make it easier.

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That is interesting.

Some older people have some kind of pride thing going sometimes - I think they see things ebbing away on what they can’t do anymore. I saw it more with men in skilled care when passing out the meds.

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It seemed counterintuitive to me but my H, who is a neurologist, is very familiar with this technique.

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My dad did it all–but he had reflux and often times his throat was just closed. Pills just got stuck.
Putting your chin down opens your throat better rather than tipping back.

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Mom knew enough to delete today’s phishing email (" we have a package but need toconfirm your credit card #") without opening it…but her back is bothering her, and she was having a sad day missing dad…

…the medicare scammers got her with phone call #2000. Did she want a new, plastic , card? Just tell them her account numbers and they’ll send it right out. (We aren’t sure exactly what numbers she gave them, and neither is she) She is quite distraught and feels stupid and helpless. There’s a special place in hell for these guys.

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New poster on this thread and I just want a place to chat for a sec. Dad is late 80s and has had multiple “minor” strokes in the last month. He’s gone from being upright standing next to Mom in last year’s Christmas picture to hunched over a walker, fatigued after 20’, and looks scary on stairs (but insists upon doing them). It’s so hard to watch him go downhill so quickly, and now my mom is suddenly asking for advice on things to do to help him.

New stage of life, and I just don’t like it.

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Is he getting PT services? I’m sorry it’s hard to see decline. :pensive:

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Funny you should ask this. His doctor and his PT daughter (that would be me) have asked him about this and he’s not interested in going. Talk about an arrow through my heart! But he was hospitalized with one of his strokes last week. He realized he was crazy weak at that point and I pretty much read him the riot act when we got home from the hospital.

To his credit, when my mom asked him to do five sit to stands before dinner, he did. I think this level of weak scared him.

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Sadly, welcome to this forum! But glad you’re here.

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He may improve with rehab: my mother did. But what is suddenly causing more than one stroke?

So sorry but welcome!

Maybe if the PT person comes to his home he will be more willing to cooperate? My mom was pretty good with PT in the home—moreso than when it was at rehab.

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Very sorry your father is going thru this. Could other comorbidties or new meds also be an issue?

What about some safety training to guard against fall risks?

Sometimes a third party messenger is heard by the patient.

Pls don’t take it personally.

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Oh, that’s hard. But men sometimes need a goal, so maybe he could be persuaded to do some work if there’s a clear goal "You’ll feel better if we can work up to 15 reps"etc.

Tell us about your dad and mom. What was life like before the TIAs?

PT came to my dad’s home. Even when he wasn’t able to do some of the exercises at the time they were there , they would demonstrate what to do and leave instruction sheets.

One which helped a lot was using a 21/2"-3" hard foam cushion on which to step up and down whle holding onto the walker. It really helped improve balance. The cushion should have some give to provide just a bit of unsteady surface (but still support your weight well without caving) They’re used for yoga I think and we bought them on Amazon.

Someone else taught leg strengthening exercises to do in bed (he complained he was too tired to get up and the PT guy said “No problem! Now do this!”) He started his day out doing the exercises after that.

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@kjofkw @compmom @HImom @Hippobirdy @greenbutton @gouf78 , Thank you all for the welcome and thoughts. Let me respond to your questions:

What’s causing the TIAs/strokes? Some sort of clot. They are not sure from whence it is coming, so he’s been wearing a cardiac monitor off/on for the last month (since the first stroke). The MDs switched his blood thinners after he had symptoms the second time; he should be at a therapeutic level by the end of the week.

My understanding is that home health PT is limited to people who cannot physically go to outpatient therapy. Dad might get to that point soon, but at this point he is not house bound. I’ll keep tabs on this and have my mom reach out to his doc for a referral if he continues to decline.

From a medical perspective, Dad looks ok for his age. He has hypertension (controlled on meds) and high cholesterol (same), but other than that, is ok. His world has gotten smaller over the last few years–his doc made him give up horseback riding a few years ago, and after decades of singing barbershop, he decided to stop. His strength has gradually decreased with increased sitting in front of the television, which meant that he no longer felt comfortable getting on/off the ground to do all the gardening. I bought my folks a sitting elliptical a few years ago, but Dad’s consistency/interest has never been high unless my mom insists, and she gets tired of “suggesting” he try it. I talked about sit to stand as insurance for being able to stay in your home and toilet independently, but maybe I didn’t phrase it enough as a goal. That’s a good idea.

I tried asking Dad months ago what his criteria was going to be for when to switch to the downstairs bedroom and he couldn’t come up with any. I can make another attempt to talk to Mom/Dad about throw rugs, cords, closed shoes (toe/heel) and installing more grab bars in the downstairs bathroom, as they only have them upstairs. But, you’re right, maybe I can figure out a third party to reinforce the message.

Mom is slowing down, but in comparison looks like a pillar of health. The biggest difference is that she is willing to fight to stay active on some level. She’s definitely in better shape cognitively, as the latest stroke affected his short term memory.

Ah, tone on the internet is always iffy. I didn’t take my Dad’s lack of interest in PT personally; I just find it somewhat ironic that this is the one thing that I could actually be helpful with, and this is where he pushes back. So instead they call me their “bulldog” at the ER, because I’m the one that asks the questions.

Thanks again for the welcome.

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I’m just a lay person, just wonder if his weakness or lack of interest in PT may be related to the blood clot/ delayed effects/ injury to brain/ heart disease/ less oxygen than before. Have seen that in a couple of our family’s elders.

How is his balance? Is he leaning toward one side or another?

With our elders we were advised to watch for personality changes, too, as med side effects or start of cognitive decline.

Could home assessment for safety/ home health services be brought in; boost your mother’s morale or help with some type of respite care.

Having main floor / one level living space has been game changer for my in laws.

May God grant you serenity to accept things you cannot change, courage to change what you can, and wisdom to know the difference.

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When my mom got home PT, she was able to walk and did walk and went from one of our houses to another every day. The MD (or other healthcare worker) just needs to say it’s needed to help build up his strength and avoid hospitalization, etc.

Mom was really much better with home PT than in a strange venue. Even tho the home PT wasn’t actually in her house. It was conducted in whichever house or the CCRC where she was located.

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